The past week or so has been really exciting for me in terms of my possible futures. I'm feeling optimistic again, which is really exciting. I'd had some nebulous goals and ideas, especially following the AXIS Intensive which reaffirmed my desire to make dance a vital component, but I was feeling adrift, lost, stressed. Suddenly things are - well, not necessarily
happening, but allowing potential for happening. I'm almost nervous to talk about them, like I could jinx them somehow.
One of the things I knew coming out of AXIS was that I had to leave GIMP. This may sound backwards to you all - I want to do more dance so I need to quit the company I dance with? But AXIS was a very different experience than GIMP is. It's formulated on an entirely different structure, with different values and methods. I worked as hard or harder than I have for GIMP, for 6-8 hours a day for a week, and didn't hurt myself or break down and cry or anything. I had so much fun. I was full of joy in movement, the way I remember dance being. I get the performance high with GIMP but the process doesn't work for me. It's a traditional professional nondisabled company model, with all that entails, that now includes some disabled dancers. This isn't a step towards equality; rather, it encourages and reinforces hierarchical (with the crips on the bottom) and ableist dynamics. Disability - and all
that entails, emotionally and politically and even some ways physically - is expected to be set aside in favour of dance, rather than being built into the understanding of dance. HL and I don't work well together, really, either; she's a very confrontational, shout-it-out, speak-before-thinking type and
I'm just not. So while I love the piece and I think it performs an important function, and I've loved performing in it and bringing it to new audiences and showing them myself as a dancer, and while I've learned a huge amount about myself and dance and, sheesh, everything, I can't do it. I spend too much time injured and crying and it's not fair for me or for the company.
So I've left.
Well, I'm not gone yet. I gave my notice, basically. We have a gig in Pittsburgh in October and I'll be performing there. After that, I'm done. I was super scared to resign. I talked to one of the other cast members for advice though and she was supportive. So this past week, I did it. I was afraid to answer my phone or check my email afterwards, for fear there'd be Confrontation And Drama, but actually, it went as well as I could have hoped. HL responded with a kind and thoughtful email thanking me for my contributions and my honesty and agreeing that my decision makes sense. Additionally, it looks like Pitts might be our last performance regardless of what decision I'd made (which actually makes me glad I made it myself, first, for my own self-care purposes, building my own strength). The cast are scattering over the continent and it's getting harder and harder to pull a cast together when needed, and we're being booked less. So, after three years or so since its launch, it looks like GIMP may retire. RIP.
But what now, for dance?
Well, again as of just this week ish, I have some answers maybe. Possibilities, at least.
Last winter/spring I danced with Tiffany Rhynard's BIG APE; I must have posted about that at least a little. Maybe not? (I'd wanted to be able to show you all some video but the plan just didn't work out. Sad face.) It was a great project called Everyone Can Dance. What she did was she took a core company of eight dancers and recruited another thirty+ community members in an area - she did shows in Burlington, Montpelier, and Middlebury. I was a Burlington recruit. The community members ranged from about 8-65 in age, all different levels of dance experience, different abilities and body types, different racial/ethnic and class backgrounds, different levels of fluency in English, even. Hugely diverse. Then, in about eight rehearsals (!!), we made a show. There were some pre-set sections for company members, some frameworks lightly pre-choreographed for community, and then all-new pieces we made collaboratively. The show in the end was about an hour long and it was
great. I really mean that. And then she did Montpelier, and then Middlebury. For Middlebury I was invited back to participate a second time, which I did very happily, and it was an even better show. (I did my first-ever choreography for it!)
I also got to see Tiffany's process evolve from show to show, which was great. She really learned and grew. This is one thing I like about working with her - she learns and changes and adapts; she listens to feedback and incorporates it. The other thing I love is she's relaxed and all about fun. The incredibly short period in which we took nearly 40 people to make a full evening performance could have been a stress madhouse. It never was. It was full of laughing and smiling. It was, more often than not, chaos - or it appeared to be. And it
worked. Out of all the individual agencies and chaotic whole we grew something; the show emerged organically, different each time, from each group's process. And we were proud of it and we loved it and we did a damn good job. And we smiled. Did I mention that? We had the time of our
lives.
Tiffany's looking to take this show on the road, literally. She wants to compact the process and take a (smaller) core touring to other communities to build pieces with them. And, she wants not only to do a show in these communities, but use the process to help set up resources to connect people with dance, and make available dance resources accessible to everyone. She emailed me asking if I'd like to be a part of this new core group. Would I ever!!!
We got together last weekend to see a local dance show (interesting modern works, I cannot even begin to describe; Claire Byrne and Heidi Henderson) and have coffee and chat. We talked for like two hours and it was great. We talked about the ECD project and how to make it succeed in different communities, what its strengths are and how to use it as a community tool (it basically already is one, so this is just an extension of its existing functions).
We also talked about dance more generally... lots of great things happened in this conversation but the upshot is that Tiffany is interested in continuing to make work with me, maybe a solo?, and we're going to get some dates together for this fall and start exploring that. Hopefully I'll be able to go down to Middlebury to take dance classes there (they're free, at the college, which is where Tiffany works) and combine that with studio time with her. It'd also give me a chance to pursue some of my own dance goals: I want to choreograph. I want to make work. I talked to Tiffany a bit about what I'm interested in right now, which is mainly duets, relationships. (The crutches have impacted me a lot in that realm; they're me, but not me, so we have a relationship, they and I, in some ways being a duet ourselves; with other people, they impact interaction, change the ways I can touch and connect; and other people relate to them and me in different ways, too. I got to explore this a little with AXIS, and I want more.) I'd like to make one with the young woman I choreographed with for the ECD: Midd performance last spring, who's a dance student there still. And that might happen.
There are a bunch of large obstacles to pursuing dance independently (Big APE aside). AXIS illuminated for me how much I want/need to do so, what it does for my soul, but then I had to come to terms with how
hard it is. I need access to classes - ok, I can do some of that locally, but they're expensive; I can travel a short distance and get them cheaper, but there's transport issues and costs. Ideally I would learn from and have access to other dis/abled dancers and companies, and that's not going to happen (much) locally. The trip I made to do the AXIS thing was incredibly expensive, and the workshop cost was actually covered for me by scholarship. Other companies are even further away; there are great companies internationally, here and there. There just isn't a lot. How to reach it? Okay, let's stay local: even locally, I need studio space to work in. I need people to work with. And eventually I need some sort of venue (and then to be able to promote, etc...) if I want to perform. If I want to teach/educate with dance, there's curriculum development, and then there's finding people to work with/on, and just... a lot of research and development. Or should I work towards auditioning for AXIS or a similar company? Could I sustain that kind of involvement, and would leaving VT be an acceptable price?
At least some of these problems have potential solutions now.
A little over a week ago, I
finally got the decision from my Social Security hearing. It's "partially favourable". What this means is that my SSI application was approved, as the government has decided that I really
am disabled; my SSD was not, because (frustratingly) I don't have medical evidence (due to poor providers, largely) to prove disability as of my "date last insured", ie. the last date I was able to work any decent amount. Why I have to prove I was too disabled to work as of the last time I
was working, well... that's the US for you?
Anyway. I went to see the benefits counselor at VR about what this all means. (Note: I don't have my cold hard awards statement from SS yet, I have an appointment to go talk in person with them next week in which that should happen, so there's a chance this can all still go pearshaped but hopefully the judge's decision does what it should and things happen.) It's actually way better news than my legal rep had implied. SSI will cover my needs. I cannot stress what a relief this is. It means I can fuel the car and pay my bills and buy food and, with the backpayments from two years' appeals, maybe even have a savings account for the first time since I was a teenager. It also comes with guaranteed Medicaid, which in VT is actually pretty good, and which is structured in such a way that I am basically always guaranteed healthcare - even if I am able to work at some point, there are provisions to help me retain Medicaid since I am legally classified as disabled now. And, since all the work I do lately is self-employment, there are some great incentives in the SSI program to encourage that without cutting me off and jeopardising my stability. I'll have a small rent increase, but this will be accounted for in my payments. (Though not entirely as result of the SSI process,) my student loans, another nightmare, can be deferred practically indefinitely or someday forgiven entirely. I might be financially stable, guys. I might be able to self-support. H has been helping me out but it puts a huge emotional strain on me/us to be dependent, and it means he can't really save for the future either. This is... it's massive. I might have cried a little.
(oh, $deity, please don't let it find some way to go wrong even now. I have the court decision. Let that work the way the benefits counselor promises me it should.)
(and this means, everyone, that if you didn't already, you'll now know someone who's being given a new chance at a stable and meaningful life courtesy one of the stigmatised and scorned "entitlement programs" that are so under fire lately...)
The benefits counselor also told me some things my original VR counselor never did, about VR's support programs for self-employment (even in the arts!) or financial support for medical or other equipment that supports employment. There's a chair in my future and I've been fretting over how I'll afford that, but it might be okay, with Medicaid and VR. But
more excitingly, VR will support arts careers for disabled folk. I might be able to get funding, travel, or equipment assistance to study and work doing dance. I have to email my old counselor to find out, but I'm cautiously hopeful. I don't know that I could get them to send me, say, to New Zealand or Israel or the UK, where some of the fab companies are, but local classes, permaybehaps? Ideally I'd build into my plan not just performance but using dance as an educational/community tool - eg. developing workshops that use movement/dance to help participants experience their own bodily diversities and engage with each others'.
Between that and developments with Tiffany... I'll be keeping dance in my future, yes please. I have some more detailed potential plans for myself, but I think I'll keep those quiet just now as they are nascent and tender. More if they can develop.
Also this past week I've had some really pleasant and exciting reconnections with lovely people and that's been just a delight.
Oh, and I'm interviewing for a very part-time position (1 maybe 2 days a week tops) at my favourite local yarn store.
So it's been a great, exciting week, all in all. Mind-blowingly. I feel like for once I might be getting my feet under me.
Here's to the futures.